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- Genetic Privacy and Identity in Community Settings: GetPreCiSe Center ... Concerns about privacy and personal identity impede use of data about genomic variation, ...
Investigator: Malin, Bradley A
Clayton, Ellen WPerforming Organization: Vanderbilt University Medical Center, GetPreCiSe Center Supporting Agency: National Institutes of Health (NIH), National Human Genome Research Institute (NHGRI) Award: Grant Project UI: 20181388 Project Status: Completed - Ethical, legal, and social issues for precision medicine and infectious disease ... Precision medicine is an emerging approach for disease treatment and prevention ...
Investigator: Geller, Gail
Kahn, Jeffrey PPerforming Organization: Johns Hopkins University, Berman Institute of Bioethics Supporting Agency: National Institutes of Health (NIH), National Human Genome Research Institute (NHGRI) Award: Grant Project UI: 20181393 Project Status: Completed - Center on American Indian and Alaska Native genomic research ... American Indian and Alaska Native concerns about genomic research have, in a very real sense, ...
Investigator: Spicer, Paul G
Cobb Greetham, Amanda
Lewis, Cecil MPerforming Organization: University of Oklahoma, College of Arts and Sciences, Center for Applied Social Research Supporting Agency: National Institutes of Health (NIH), National Human Genome Research Institute (NHGRI) Award: Grant Project UI: 20181394 Project Status: Completed - Integrated, Individualized, and Intelligent Prescribing (I3P) ... A widely held vision arising from the Human Genome Project is use of newly available genetic ...
Investigator: Denny, Joshua Charles
Levy, Mia APerforming Organization: Vanderbilt University Medical Center, Department of Biomedical Informatics Supporting Agency: National Institutes of Health (NIH), National Human Genome Research Institute (NHGRI) Award: Grant Project UI: 20181407 Project Status: Completed - Stigma in African genomics research on schizophrenia and rheumatic heart disease ... Genomics research in Africa raises a host of ethical issues. An issue ...
Investigator: De Vries, Jantina Performing Organization: University of Cape Town, Faculty of Health Sciences, Bioethics Centre Supporting Agency: National Institutes of Health (NIH), National Human Genome Research Institute (NHGRI), National Institutes of Health (NIH), Office of the Director (OD) Award: Grant Project UI: 20181411 Project Status: Completed - : Electronic health record (EHR)-based genomic risk assessment and management for diverse populations State: ... Recently, large-scale genome-wide association studies ( ...
Investigator: Weng, Chunhua
Hripcsak, George M
Chung, Wendy K
Kirluk, Krzysztof
Gharavi, Ali GPerforming Organization: Columbia University Irving Medical Center, Department of Medicine
Columbia University Irving Medical Center, Department of Biomedical InformaticsSupporting Agency: National Institutes of Health (NIH), National Human Genome Research Institute (NHGRI) Award: Grant Project UI: 20181421 Project Status: Ongoing - eMERGE phase IV clinical center at Partners HealthCare ... To enable the application of PRS development and implementation, our eMERGE IV proposal from Partners ...
Investigator: Karlson, Elizabeth W
Murphy, Shawn N
Smoller, Jordan W
Weiss, Scott TPerforming Organization: Brigham and Women's Hospital, Department of Medicine, Channing Division of Network Medicine Supporting Agency: National Institutes of Health (NIH), National Human Genome Research Institute (NHGRI) Award: Grant Project UI: 20181424 Project Status: Ongoing - The future of genomics medicine in patient care: contributions from Children's Hospital of Philadelphia (CHOP) ... The Center for Applied Genomics (CAG) at The ...
Investigator: Hakonarson, Hakon Performing Organization: Children's Hospital of Philadelphia, Research Institute, Center for Applied Genomics Supporting Agency: National Institutes of Health (NIH), National Human Genome Research Institute (NHGRI) Award: Grant Project UI: 20181423 Project Status: Completed - VGER: the Vanderbilt Genome Electronic Records project ... With their introduction into practice over the last two decades, electronic medical records (EMRs) ...
Investigator: Roden, Dan M
Denny, Joshua CharlesPerforming Organization: Vanderbilt University Medical Center, Department of Medicine, Division of Clinical Pharmacology Supporting Agency: National Institutes of Health (NIH), National Human Genome Research Institute (NHGRI) Award: Grant Project UI: 20181415 Project Status: Completed - Genomic medicine at Northwestern: discovery and implementation ... National Human Genome Research Institute's vision for genomic medicine includes elements ...
Investigator: Chisholm, Rex L
Smith, Maureen EPerforming Organization: Northwestern University, Feinberg School of Medicine, Center for Genetic Medicine Supporting Agency: National Institutes of Health (NIH), National Human Genome Research Institute (NHGRI) Award: Grant Project UI: 20181416 Project Status: Completed - Community-based evaluation of APOL1 genetic testing in African Americans ... End-stage renal disease (ESRD) or kidney failure affects over 500,000 persons in ...
Investigator: Young, Bessie A
Burke, Wylie GPerforming Organization: University of Washington, School of Medicine, Department of Medicine, Division of Nephrology Supporting Agency: National Institutes of Health (NIH), National Human Genome Research Institute (NHGRI) Award: Grant Project UI: 20161014 Project Status: Completed - EMR-Linked Biobank for Translational Genomics ... Medical care informed by genomic information is beginning to move into clinical practice. The Electronic ...
Investigator: Williams, Marc S
Ritchie, Marylyn DPerforming Organization: Geisinger Health System, Genomic Medicine Institute Supporting Agency: National Institutes of Health (NIH), National Human Genome Research Institute (NHGRI) Award: Grant Project UI: 20161052 Project Status: Completed - Genomic medicine pilot for hypertension and kidney disease in primary care ... Robust systems to consent, screen, return results, and to evaluate processes ...
Investigator: Horowitz, Carol R
Bottinger, Erwin PPerforming Organization: Icahn School of Medicine at Mount Sinai, Charles R. Bronfman Institute for Personalized Medicine Supporting Agency: National Institutes of Health (NIH), National Human Genome Research Institute (NHGRI) Award: Grant Project UI: 20161235 Project Status: Completed - eMERGE IV IV Northwest: a partnership to evaluate the use of genomic information in the health care of diverse participants ... Project Abstract eMERGE IV ( ...
Investigator: Jarvik, Gail Pairitz
Crosslin, David Russell
Larson, Eric BPerforming Organization: University of Washington, School of Medicine, Department of Medicine
Kaiser Permanente, Kaiser Permanente Washington Health Research InstituteSupporting Agency: National Institutes of Health (NIH), National Human Genome Research Institute (NHGRI) Award: Grant Project UI: 20161041 Project Status: Ongoing - Enhancing the biobanking informed consent process to improve comprehension ... Obtaining valid consent for the collection and storage of biospecimens and data ...
Investigator: Weinfurt, Kevin P
Beskow, Laura MPerforming Organization: Duke University, School of Medicine, Duke Clinical Research Institute Supporting Agency: National Institutes of Health (NIH), National Human Genome Research Institute (NHGRI) Award: Grant Project UI: 20161164 Project Status: Completed - Patient safety in genome medicine: learning from the past to safeguard the future ... Genomic testing offers significant promise for improving the diagnosis ...
Investigator: Fullerton, Stephanie Malia Performing Organization: University of Washington, School of Medicine, Department of Bioethics and Humanities Supporting Agency: National Institutes of Health (NIH), National Human Genome Research Institute (NHGRI) Award: Grant Project UI: 20161198 Project Status: Completed - Beyond data security: promoting confidentiality and advancing science ... A range of potential solutions has been proposed to the confidentiality challenges ...
Investigator: Beskow, Laura M Performing Organization: Duke University, School of Medicine, Duke Clinical Research Institute Supporting Agency: National Institutes of Health (NIH), National Human Genome Research Institute (NHGRI) Award: Grant Project UI: 20161186 Project Status: Completed - Preparing for emerging applications of noninvasive prenatal testing ... Noninvasive prenatal genetic testing, which utilizes cell-free fetal DNA and advances ...
Investigator: Farrell, Ruth Performing Organization: Case Western Reserve University, Cleveland Clinic Lerner College of Medicine, Obstetrics, Gynecology and Women's Health Institute Supporting Agency: National Institutes of Health (NIH), National Human Genome Research Institute (NHGRI) Award: Grant Project UI: 20161029 Project Status: Completed - Embedding pharmacogenotyping in an integrated health system for the underserved ... The goal of personalized medicine is to implement advances in biomarker ...
Investigator: Skaar, Todd C
Dexter, Paul
Flockhart, David AlastairPerforming Organization: Indiana University, School of Medicine, Department of Medicine, Indiana Institute for Personalized Medicine Supporting Agency: National Institutes of Health (NIH), National Human Genome Research Institute (NHGRI) Award: Grant Project UI: 20161249 Project Status: Completed - Ethically responsible clinical decision support for Lynch Syndrome screening ... Dr. Korngiebel's long-term goal is to become an independent researcher at ...
Investigator: Korngiebel, Diane Performing Organization: University of Washington, School of Medicine, Department of Biomedical Informatics and Medical Education Supporting Agency: National Institutes of Health (NIH), National Human Genome Research Institute (NHGRI) Award: Grant Project UI: 20161129 Project Status: Completed