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  1. Supporting rare disease research at NIH | NIH MedlinePlus Magazine 
    https://magazine.medlineplus.gov/...ing-rare-disease-research-at-nih
    ... Supporting rare disease research at NIH Rare Diseases Clinical Research Network brings the spotlight to over 7,000 ... Can you tell us about the Rare Diseases Clinical Research Network? The network came about through legislation that ...
  2. Appreciating the Distinction: Clinical Informatics Research vs. Clinical Research Informatics – NLM Musings from the ... 
    https://nlmdirector.nlm.nih.gov/...-vs-clinical-research-informatics
    ... within this intersection are Clinical Informatics Research and Clinical Research Informatics. While their names may sound similar, these ... for enabling a future of data-powered health. Clinical Research Informatics Clinical Research Informatics is centered around leveraging ...
  3. NLM Conference Examines How to Leverage Best Practices for Clinical Research 
    https://infocus.nlm.nih.gov/...-best-practices-for-clinical-research
    ... Conference Examines How to Leverage Best Practices for Clinical Research ” Pingback: Weekly Postings | The MARquee Comments are closed. ...
  4. Uncovering a cure: NIH-supported research lays the groundwork for understanding and treating pain | NIH MedlinePlus ... 
    https://magazine.medlineplus.gov/...-understanding-and-treating-pain
    ... pain relief treatments. Read more about this work . Clinical pain research Clinical research studies different treatments and interventions to find out ...
  5. What is it like to research a rare disease? | NIH MedlinePlus Magazine 
    https://magazine.medlineplus.gov/...-like-to-research-a-rare-disease
    ... with support from NIH and the Rare Diseases Clinical Research Network. She talked about what it's like to ... Find Out More MedlinePlus: Rare Diseases Rare Diseases Clinical Research Network National Urea Cycle Disorders Foundation What’s Cooking? ...
  6. Thomas C. Chalmers: Clinical Research Pragmatist – Circulating Now from the NLM Historical Collections 
    https://circulatingnow.nlm.nih.gov/...s-clinical-research-pragmatist
    ... a long career combining clinical practice, teaching, conducting clinical trials, and leading academic research centers. He first worked in Boston-area hospitals ...
  7. The Increasing Focus on the Patient in Patient Registries - 21st Century Patient Registries - NCBI Bookshelf 
    https://www.ncbi.nlm.nih.gov/books/NBK493820
    ... Definitions of Patient-Centered Care and Patient-Centered Clinical Research The Institute of Medicine (IOM) defines patient-centered ... a patient-centered approach in medical care and clinical research may be facilitated by a variety of factors ...
  8. Informed Consent for Registries - Registries for Evaluating Patient Outcomes - NCBI Bookshelf 
    https://www.ncbi.nlm.nih.gov/books/NBK208622
    ... may apply. 3 2.1. Registry Research vs. Clinical Research Some differences between registry research and clinical research are worth noting. In particular, the use of ...
  9. Congressional Justification FY 2019 
    https://www.nlm.nih.gov/about/2019CJ.html
    ... genomics by intramural scientists at NLM. Translational and Clinical Research to Improve Health NLM supports both the discovery ... the world’s largest, publicly accessible database for exploring clinical research studies conducted in the United States and abroad. ...
  10. Digital Health and Patient Registries: Today, Tomorrow, and the Future - 21st Century Patient Registries - NCBI ... 
    https://www.ncbi.nlm.nih.gov/books/NBK493822
    ... real-world environments. Utilization of Digital Health in Clinical Research Smartphones have become an important way for patients ... invested millions in establishing the National Patient-Centered Clinical Research Network, PCORnet, with a goal of working with ...
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