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  1. ... Genetic Testing Registry: Paragangliomas 1 Genetic Testing Registry: Paragangliomas 2 Genetic Testing Registry: Paragangliomas 3 Genetic Testing Registry: ...
  2. ... gene changes increase the risk of pheochromocytoma or paraganglioma: Multiple endocrine neoplasia 2 syndrome , types A and B (MEN2A and MEN2B). von Hippel-Lindau (VHL) syndrome . Neurofibromatosis type 1 ... syndrome . Carney-Stratakis dyad (paraganglioma and gastrointestinal stromal ...
  3. What Are the Treatments for Adrenal Gland Disorders? From the National Institutes of Health (National Institute of Child Health and Human Development)  
    ... below the upper lip. Radiation is also used. 2 Pheochromocytoma/Paraganglioma The usual treatment for pheochromocytoma/paraganglioma is removal ...
  4. How Many People Are Affected by or at Risk of Adrenal Gland Disorders? From the National Institutes of Health (National Institute of Child Health and Human Development)  
    ... as being associated with the tumors. 7 Paraganglioma Paragangliomas also are very rare. Only about 2 in every 1 million people are affected. These tumors can occur at any age. Up to 25% of paragangliomas are caused by genetic syndromes. 8 Addison’s Disease ...
  5. Pheochromocytoma From the National Institutes of Health (National Institutes of Health, Clinical Center) - PDF  
    ... such as multiple endocrine neoplasia type 2 (MEN-2) or familial paraganglioma syndrome caused by succinate dehydrogenase gene mutation (e. ...
  6. Genetics Home Reference: Cancer From the National Institutes of Health (National Library of Medicine)  
    ... mycosis fungoides neuroblastoma neurofibromatosis type 1 neurofibromatosis type 2 neuromyelitis optica nonsyndromic paraganglioma Pallister-Hall syndrome Peutz-Jeghers syndrome pilomatricoma Proteus ...
  7. Pheochromocytoma and Paraganglioma From the National Institutes of Health (National Institute of Child Health and Human Development)  
    ... formerly called extra-adrenal pheochromocytomas. There are developmentally two subgroups of these tumors: parasympathetic paragangliomas and sympathetic paragangliomas. These subgroups differ in the ...
  8. Genetics Home Reference: Nonsyndromic paraganglioma From the National Institutes of Health (National Library of Medicine)  
    ... You may find the following resources about nonsyndromic paraganglioma helpful. These materials are written for the general public. MedlinePlus - Health information (2 links) Genetic and Rare Diseases Information Center - Information ...
  9. ... to prevent cancer. Pheochromocytoma and Paraganglioma Pheochromocytoma and paraganglioma are rare tumors that come from the same type of nerve tissue . Pheochromocytoma forms in the adrenal glands . There are two adrenal glands, one on top of each kidney ...
  10. Cancer Genetics Services Directory (National Cancer Institute)  
    ... familial Neuroblastoma, hereditary Neurofibromatosis type 1 Neurofibromatosis type 2 Nijmegen breakage syndrome Pancreatic cancer, hereditary Paraganglioma, hereditary Peutz-Jeghers syndrome Polyposis, familial adenomatous Polyposis, ...
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